Rare Disease Ghana Initiative

Rare Disease Ghana Initiative is an NGO that serves as a voice coordinating care for persons affected by undiagnosed, genetics and rare diseases in Ghana.

Volunteering Activities

Web Work
Women Empowerment

What We Need

We are looking for volunteers to assist our organisation with operational activities; business development; events, fundraising; program management and regional coordination.

When & Who

all year round
Yes, we require a minimum of 30 Days
Individuals, Groups, Disabled

What we Provide

Homestay, Guesthouse

International Volunteers will be housed in a guesthouse which will be located few minutes walk away from the place of work.

Wifi & Satellite
Hot Water

Our Fees


Fees cover cost of accommodation and ground transportations.


No reviews yet.

More Services we Offer

May have additional fees
Pick Up/Drop Off

Contact Person

Samuel Agyei Wiafe
F393 Fourth Otswe St, Accra, Accra, Ghana.

Other Ways to Help

laptops, souvenirs,

Additional Info about Us

10 to 20 people

Rare Disease Ghana Initiative (RDGI) is a registered national Non-Governmental Organisation in Ghana made up of a network of professionals, patients, caregivers and organisations whose aim is to develop, seek wide endorsement and to advocate for the implementation of a plan to support research, education, service development and seek support for individuals and families affected by undiagnosed, genetic and rare diseases in Ghana.

RDGI brings together rare disease patient support groups, charitable and non-profit organizations, health organizations, clinical experts, researchers, emerging biotech enterprises, and industry partners to take action on rare disease in Ghana and in collaboration with international alliances.
RDGI provides the platform for addressing the gaps in the entire continuum of rare disease management from increased knowledge and awareness to early diagnosis and prevention to the best to best practice treatment and care to community engagement to access to best treatments and comprehensive research.

The Mission of RDGI is to improve the wellbeing and quality of life of persons affected by undiagnosed, genetic and rare diseases in Ghana. The vision of RDGI is to be the leading organization for healthcare professionals, patients, caregivers and researchers; serving as the voice and coordinating care for rare diseases in Ghana.

RDGI is a 2019 top rated non-profit (Greatnonprofit); a member of Rare Disease International; a member of African Alliance for Rare Disease and a member of Rare Foundation Alliance of Global Genes.

What are you waiting for?

We at Rare Disease Ghana Initiative would love to hear from you!