Rare Disease Ghana Initiative
Volunteering Activities
What We Need
We are looking for volunteers to assist our organisation with operational activities; business development; events, fundraising; program management and regional coordination.
When & Who
Our Fees
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Contact Person
Other Ways to support us
laptops, souvenirs,
Additional Info about Us
Rare Disease Ghana Initiative is the National Alliance Non-Governmental Organization in Ghana leading advocacy and serving as a voice for persons living with undiagnosed, genetic and rare diseases in Ghana. RDGI brings together rare disease patient support groups, charitable and non-profit organizations, health organizations, clinical experts, researchers, emerging biotech enterprises, and industry partners to take action on rare disease in Ghana and in collaboration with international alliances. Rare Disease Ghana Initiative is a member of Rare Disease International; a member of African Alliance for Rare Disease and a member of Rare Foundation Alliance of Global Genes. RDGI is also a member of the International Rare Disease Research Consortium (IRDiRC) and serves on the Patient Advocates Constituent Committee (PACC) and a member of the Undiagnosed Disease Network International (UDNI). RDGI is also a member of the West Africa Civil Society Organizations (WACSO) under the West Africa Civil Society Institute (WACSI).
